Establishing

Incapacity Literacy

Creating clear pathways for independent, supported or substitute decision-making
through training, research and advocacy

The Unseen Vulnerability

A person often cannot self-identify when they are incapable of making decisions for themselves - this creates a vulnerable situation. Because they have to rely on their substitute decision maker (i.e. POA) and the Canadian business to help protect a vulnerable person from being taken advantage of.  

Yet, behind the scenes, there’s a big crack in the system.

There is no reliable way to confirm if supported or substitute decision making is made at the right time or by the right person.

How We Make an Impact

Establishing Canada as a world leader of Incapacity Literacy and the way we protect the autonomy of vulnerable people.

Resources

Toolkits, protocols to identify and respond to risk factors of incapacity, digital hub, integrations with stakeholders who further CCDMC’s vision or objectives.​

Research

Develop Canadian Intellectual Property by defining concepts related to Incapacity Literacy, sponsor validation studies and recommendations for improved protocols.​

Advocacy

Policy engagement, advocacy, model standards, public campaigns, coalition building.​

Training Module

License our accredited multi-tiered curricula, workshops, simulations, and train-the-trainer.

working definition

Incapacity Literacy

Three overlapping circles that represents financial, health, and mental health literacy to form Incapacity Literacy as a whole.
Fig. 1: Financial, Health and Mental Health Literacy Overlap to form Incapacity Literacy

The acquired knowledge of health, financial, and legal information needed to plan for one's own possible incapacity and the skills to respond to incapacity in others across the spectrum of decision-making; to appropriately promote personal autonomy while protecting those vulnerable to risk of harm with supported or substitute decision-making.

The Problem

1. No system to detect the use of fraudulent or revoked documents

2. Incapacity is often misapplied - lack of screening and inconsistent assessments

This all leads to unpredictable and/or unreliable outcomes for vulnerable people, including early removal of autonomy using only cognitive scores or decision-making stigmas, breaches of privacy, family conflict, and financial losses. ​

The Root Causes

1. Every person makes decisions differently and it evolves over time.​

2. Variable assessment procedures and training resources.​

3. Subjective pathways and a lack of standardized tools.​

4. Limited collaborative metrics or feedback loops to improve practice standards.​

5. Need for universal fraud prevention system because information sharing is difficult.​

Who We Are

The Canadian Centre for Decision-Making Capacity is a non-profit dedicated to advancing Incapacity Literacy through research, education, and advocacy to create clear pathways for independent, supported or substitute decision-making.

Our Vision

Canada regarded as a global leader in the way personal autonomy is understood, supported, respected and preserved wherever possible.

Vulnerable people, supported/substitute decision makers and organizations to have practical tools, training and standards to respond to risk factors for incapacity.

Join our Advisory or Research Committee

Contact us to learn more about our initiatives and join the advisory or research committee.

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contact@incapacityliteracy.org
(289) 802-2397